• Resources for Parents and the Public

• Parent's information for Neuroblastoma (CancerNet) Information about the disease, staging, and treatment overviews. It is reviewed each month by a panel of medical experts.
• Catie Hoch Foundation, The The Foundation was set up in memory of Sloan-Kettering
• General information for neuroblastoma (St Jude's Children's Research Hospital)
• N-BLASTOMA- The Neuroblastoma Online Support Group (ACOR) Email list, includes details of how to join etc.
• Neuroblastoma (Health Canada) in the booklet "This Battle Which I Must Fight"
• Neuroblastoma (UK) a factsheet produced by the United Kingdom Children's Cancer Study Group and CancerBacup linked to the UKCCSG booklet "A Parent's Guide to Children's Cancers".
• Neuroblastoma (Royal Marsden Hospital, UK) An on-line booklet.
• Neuroblastoma Hope Foundation (ACOR) Information about diagnosis, treatment, genetics, survivorship and a broad range of issues, FAQ, bibliography, glossary etc. The site is by Honna Janes-Hodder who is an active patient advocate having lost her son to neuroblastoma.
• Pediatric Oncology Resource Center: Neuroblastoma (USA) This page contains information and links on various aspects of neuroblastoma. It is part of the Pediatric Oncology Resource Center, a site produced by parents of children with cancer, hosted by Association of Cancer Online Resources.

Candlelighters Childhood Cancer Foundation
3910 Warner St.
Kensington, MD 20895
Phone: (800) 366-2223
Fax: (301) 718-2686
Email: info@candlelighters.org
Web: http://www.candlelighters.org

Founded in 1970, Candlelighters has more than 40,000 members worldwide. Free of charge, it provides yearly bibliography and resource guides, quarterly newsletters, youth newsletters, and various handbooks to help families of children with cancer.

Candlelighters Childhood Cancer Foundation Canada
National Office
55 Eglinton Avenue E., Suite 401
Toronto, ON Canada M4P 1G8
Phone: (416) 489-6440 or (800) 363-1062 (Canada only)
Fax: (416) 489-9812
Email: staff@candlelighters.ca
Web: http://www.candlelighters.ca

Provides the same services as US Candlelighters

Ronald McDonald House Coordinator
c/o Golin Communications Inc.
111 E. Wacker Drive
Chicago, IL 60601
Phone: (312) 729-4000

Organizations that provide information

American Association for Cancer Research
Web: http://www.aacr.org/

Defines cancer by type and posts updates on action alerts, funding and public forums.

American Society of Clinical Oncology
Web: http://www.asco.org/

Information on clinical trials, guidelines, and procedures.

Cancer Therapy Evaluation Program
Web: http://ctep.info.nih.gov/

Information on clinical trials, guidelines, and procedures.

Food and Drug Administration
Web: http://www.fda.gov/oashi/cancer/cancer.html

Lists FDA approved products, patient advocacy programs, articles, directory of clinical trials.

National Cancer Institute (NCI)
Cancer Information Service
Building 31, Room 10A03
31 Center Drive, MSC 2580
Bethesda, MD 20892 - 2580
Phone: (800) 4-CANCER OR 301-435-3848
Fax: (301) 231-6941
Web: http://www.nci.nih.gov/

Provides a nationwide telephone service for people with cancer, their families, friends, and the professionals who treat them. It provides answers and sends out informational booklets on a variety of cancer-related topics.

National Childhood Cancer Foundation
440 E. Huntington Drive
P.O. Box 60012
Arcadia, CA 91066-6012
Phone: (626) 447-1674
Fax: (626) 447-6359
Web: http://www.nccf.org/

Supports pediatric cancer treatment and research in more than 115 hospitals in North America and Australia. Their newsletter, Childhood Cancerline, provides information on new treatments and psychosocial support.

National Coalition for Cancer Survivorship
1010 Wayne Avenue
Silver Spring, MD 20910
Phone: (301) 650-8868
Fax: (301) 565-9670

Organization that addresses the needs of long-term cancer survivors and advocates for changes in healthcare to maximize survivors' access to optimal treatment and support. The coalition has an extensive publications list.

Neuroblastoma Hope Foundation
Web: http://www.acor.org/nbl

This site provides explanations to medical terms you will need to know. It also contains information on leading research and treatment centers, diagnostic information, explanations of common treatment options, and links to other reliable sites.

Starbright Foundation
11835 W. Olympic Blvd. #500
Los Angeles, CA 90064
Phone: (310) 479-1212
Fax: (310) 479-1235
Web: http://www.starbright.org

Co-chaired by Steven Spielberg and Gen. Norman Schwarzkopf, Starbright Foundation is best known for its online network of interactive, virtual-reality playgrounds where seriously ill, hospitalized children across the country meet, talk, and play to help cope with the pain, stress, and anxiety of treatment. For teens who are ill, "Videos with Attitude" offer guidance from peers who have "been there." The videos are free to families and come with a parent guide.

Organizations that provide emotional support

Cancer Care, Inc.
1180 Avenue of the Americas
New York, NY 10036
Phone: (212) 302-2400 or (800) 813-4673
Fax: (212) 719-0263
Web: http://www.cancercare.org

A national, nonprofit organization that provides referrals, one-on-one counseling, specialized support groups, and educational programs. They also provide a resource guide.

Cancer Cured Kids
P.O. Box 189
Old Westbury, NY 11568
Phone: (516) 484-8160 or (800) CCK-7525
Fax: (516) 484-8160 (call first)

An organization dedicated to the quality of life of kids who have survived cancer, it supplies information about educational and psychosocial needs.

Chemo Angels

Children's Hopes and Dreams Foundation
280 Route 46
Dover, NJ 07801
Phone: (973) 361-7348

This organization operates a free, worldwide pen-pal program for children ages five to seventeen with disabilities, chronic illnesses, or life-threatening illnesses.

Friends Network
P.O. Box 4545
Santa Barbara, CA 93140
Attention: Kenon Neal

A national, nonprofit organization that distributes The Funletter, a full-color activities newsletter, to children with cancer.

Hugs and Hope Club For Sick Kids

Love Letters, Inc.
P.O. Box 416875
Chicago, IL 60641
Phone: (630) 620-1970

This free service, started by a mother whose son died of cancer, is run by a group of volunteers who send letters, cards, and gifts to catastrophically ill children. This is not a pen-pal organization. Confidentiality is guaranteed.

National Children's Cancer Society
1015 Locust #600
St Louis, MO 63101
Phone: (800) 532-6459
Web: http://www.children-cancer.com/

Advocates for children affected by childhood cancer and their families by providing financial assistance, education, and emotional support.

Songs of Love Foundation
P.O. Box 750809
Forest Hills, NY 11375
Web: http://www.songsoflove.org

A nonprofit organization that has a volunteer group of more than 200 artists who produce personalized musical portraits for children and teens with chronic or life-threatening diseases.

Financial Help

Cancer Fund of America
2901 Breezewood Lane
Knoxville, TN 37921
Phone: (800) 578-5284
Fax: (615) 938-2968
Web: http://www.cfoa.org

Helps defray cancer-related expenses not covered by insurance.

Free air services

Corporate Angel Network, Inc. (CAN)
Westchester County Airport, Building 1
White Plains, NY 10604
Phone: (914) 328-1313
Fax: (800) 328-4226
Web: http://www.corpangelnetwork.org/

A nationwide, nonprofit program designed to give patients with cancer the use of available seats on corporate aircraft to get to and from recognized cancer treatment centers. Patients must be able to walk and travel without life-support systems or medical attention. A child may be accompanied by up to two adults. This service will also fly donors. There is no cost or financial need requirements.

DreamLine, Inc.
Contact: Bob Iverson
117 North Merrill St.
Park Ridge, IL 60068
Web: http://www.bobiverson.com/dreamline

Provides free airline travel for children with serious illnesses needing transportation for emergency medical treatment or vacation.

Hope Air
Proctor & Gamble Building
4711 Young Street
Toronto, ON Canada M2N 6K8
Phone: (877) 346-4673 (Toll-Free In Canada Only)
Fax: (416) 222-6930
Web: http://www.hopeair.org/

An organization that provides free air transport to Canadians in financial need who must travel from their own communities to recognized facilities for medical care.

Wish fulfillment organizations

B.A.S.E. Camp Children's Cancer Foundation
c/o Terri Jones
4651 North Pine Hills Road
Winter Park, FL
Phone: (407) 673-5060 ^{*
     *}call for information and request form well in advance of arrival date
Fax: (407) 673-5095

Does not grant wishes, but does help obtain free or reduced price tickets to Walt Disney World, Universal Studios, and other central Florida attractions, for children with a hematology/oncology disease and their immediate family. The child with cancer must be on treatment when tickets are used. B.A.S.E. needs to receive a written request and doctor's statement (containing child's name, disease, and whether he/she is medically able to visit any central Florida attraction) between two and three weeks prior to your arrival date in Florida.

The Children's Dream Factory of Maine
Doris Simard or Skip Welch
400 US Rte. 1
Falmouth, ME 04105
Phone: (207) 781-3406

Grants wishes for chronically or seriously ill children from Maine.

The Children's Wish Foundation
Joel Jones, Director
c/o New Hope Center
100 E. Sybelia, Suite 300
Maitland, FL 32751
Phone: (407) 629-8920 (For Wishes)
Phone: (407) 599-0909 (Center for Grieving)
Fax: (407) 629-7206
Web: http://www.newhopeorlando.org/

Orlando-based organization that grants wishes for children with life-threatening illnesses who have not yet reached their 18th birthday. Focuses primarily on children who reside in Florida, but has also granted wishes to children from other parts of the US, Canada, England, and Russia. Also, provides services for grieving children who have lost a sibling, parent, grandparent, friend, etc.

The Children's Wish Foundation of Canada
95 Bayly Street, Suite 404
Ajax, Ontario
Canada L1S 7K8
Phone: (905) 426-5656
Fax: (905) 426-4111
Web: http://www.childrenswish.ca/

The national office for the Children's Wish Foundation of Canada. The foundation has chapters located across Canada, so parents can contact the national office for the chapter closest to them. The goal of the foundation is to provide a once in a lifetime experience for children suffering from high risk life-threatening diseases. Children are eligible from 3 years of age and over but under the age of 18 years before the time the request is received.

Grant-A-Wish Foundation
c/o Brian Morrison, Executive Director
PO Box 21243
Baltimore, MD 21228
Phone: (410) 744-1032 or (800) 933-5470
Fax: (410) 744-1984
Web: http://www.grant-a-wish.org/index.htm

Provides a variety of special services and programs (such as beach and mountain retreats, attending Orioles games) to any child up to 18 years of age who is being treated for cancer. Services are provided free of charge and are available on an ongoing basis throughout treatment.

High Hopes Foundation of New Hampshire, Inc.
354 N. Broadway
Salem, NH 03079
Phone: (603) 898-5333 or (800) 639-6804
Web: http://www.highhopesnh.org/

Grants wishes of chronically ill children and children with life-threatening diseases in New Hampshire.

Kids, Inc.
9300-D Old Keene Mill Road
Burke, VA 22015
(703) 455-KIDS

Grants unfulfilled wishes to gravely ill children 16 and younger anywhere in the US.

Magic Moments
c/o Children's Hospital of Alabama
1600 7th Avenue South
Birmingham, AL 35233
Phone: (205) 939-9372
Fax: (205) 939-9189

Grants wishes to children 4 to 19 living or being treated in Alabama, who have chronic, life-threatening diseases, or who have severe trauma (burns, spinal cord, head trauma).

Make-A-Wish Foundation of America
3550 N. Central Ave., Suite 300
Phoenix, AZ 85012
Phone: (602) 279-WISH or (800) 722-WISH
Fax: (602) 279-8055
Web: http://www.wish.org/

US and international chapters and affiliates. Grants wishes to children under the age of 18 with life-threatening illnesses.

The Starlight Foundation
International Headquarters
12424 Wilshire Boulevard, Suite 1050
Los Angeles, CA 90025
Phone: (310) 207-5558

The Starlight Foundation has chapters in the United States, Canada, Australia, and the United Kingdom. Contact the international office in Los Angeles, California for further information. The foundation exists to fulfill wishes for seriously, chronically, and terminally ill children age 4 through 18 years.

Sunshine Foundation
PO Box 255
5400 County Road 547 N
Loughman, FL 33858
Phone: (863) 424-4188 or (800) 457-1976
Web: http://www.sunshinefoundation.org/

No geographic boundaries. Grants wishes to chronically or terminally ill children, ages 3 to 21.

The Sunshine Foundation of Canada
148 Fullerton Street, Unit 1710
London, Ontario
Canada N6A 4P3
Phone: (800) 461-7935
Fax: (519) 642-1201

The Sunshine Foundation of Canada has chapters across the country. Call the national office and ask for the chapter closest to you. The foundation works to fulfill the dreams of children who are challenged by life threatening illnesses or severe physical disabilities. Dreams are granted for children between 3 and 19 years of age.

Wish With Wings, Inc.
Pat Skaggs or Kim Clark
917 W. Sanford St.
Arlington, TX 76012
Phone: (817) 469-9474
Fax: (817) 275-6005
Email: wish@awishwithsings.org
Web: http://www.awishwithwings.org/

Serves children living in or being treated in Texas. Grants wishes for children 3 to 16 with life-threatening diseases.